Today is World Autism Awareness day. My Facebook profile picture is my 8yo son Dylan, showing you, and me, what he thinks of autism. I imagine it’s something along the lines of “I just want to do what I want and have fun like every other boy. Sometimes it’s just hard.” Other times I imagine…… Continue reading World Autism Awareness Day 2013
Augcomm New Jersey is being produced by Eric Jager, who I’ve met. He’s a parent and skilled in meeting and event planning (at the big-boy level). I’m sure this will be a well-planned event with useful information for participants. Registration is now open for Augcomm New Jersey, a forum on augmentative and alternative communication (AAC)…… Continue reading Augcomm New Jersey: augmentative communication meeting
Here’s a short link to one of my other blogs, Watch Rick Train. I’m raising money all year for Reed Academy, starting with the Tough Mudder in Pennsylvania tomorrow and finishing with Ironman Florida in November. My goal is $140,000. This is the start. Thanks for your support; I’ll post updates at the WRT blog.
Apparently No Child Left Behind is failing because it’s revealing that schools are leaving children behind. And so schools, rather than contemplate that they’re not doing well, are suggesting that goals be changed so that they can succeed. Seriously? They’re going to change the rules because the schools are failing? Isn’t that exactly the point…… Continue reading Parents: welcome to bad parts of SpEd world
It’s come to my attention from a friend, classmate, and father of a child on the spectrum that the “Your Baby Can Read” program was recently exposed (challenged, to be sure) as a likely fraud. It was the subject of a segment on the Today Show about a week ago. Here’s the clip: Apparently this…… Continue reading Have you bought “Your Baby Can Read”?
Since the passage and effectiveness of New Jersey’s autism insurance bill, I have been struck by the odd circumstance of it being so difficult to figure out if you have coverage under the law. It took a while, but I finally created a system to share information about the health insurance benefits provided by our…… Continue reading Tell us about your health insurance
This post on paying for our own professionals from rickcolosimo.com was sparked by a health-care editorial, related to prohibitions on sharing legal fees with non-lawyers, and now belongs here. The phrase “doctors and patients as enemies” is what knocked me over in the reposted editorial by Milton Friedman. Is there anyone who doubts that very…… Continue reading Making enemies of parents and teachers
This article on the VA’s electronic records experience should be energizing autism service providers around the country, but I fear that it isn’t. The doctors involved have their own electronic records issues, and they’re almost certainly uncomfortable with anything that could make them responsible for inappropriate disclosures of information to non-medical providers, HIPAA releases notwithstanding.…… Continue reading Comprehensive medical record planning
Every parent of a child on the spectrum knows the name Catherine Maurice. Her book, “Let Me Hear Your Voice,” is a literary landmark in the field that has touched almost every parent I know. In a rare public appearance made even more rare because it’s parent-driven, Catherine Maurice will be honored by REED Academy…… Continue reading Special event honoring Catherine Maurice
< p class=”note”>I have been struggling with the question of whether to keep writing on science issues, particularly since it’s not my area of expertise (even though I’m very fond of thinking about these issues). I’ve decided to compromise and try to write about science and research policies and projects, which are of interest to…… Continue reading The promise of genetics research